Legislative Win Comes at a Cost

Congress has passed a long-awaited bill, but it won’t bring back the time lost for children with rare diseases. It’s a case of too little, too late for many families who’ve been waiting for help that never came soon enough.

The Damage is Done

The delay has been costly, and it’s not just about money. Children have suffered, and some have even lost their lives while politicians dragged their feet. It’s a stark reminder that Washington’s pace is often glacial, and it’s the most vulnerable who pay the price.